So you’ve been diagnosed with T1D…
Now what?
For the newly diagnosed people with diabetes, use this episode as a reference for what you might encounter in the first day, first week, first month, and first year of diagnosis.
Being diagnosed with T1D is scary, especially if it came out of the blue. Just know that you are not alone with this condition. There is a huge community ready to rally around you and support you as you adjust to this new reality.
Now It's Your Turn...
If you were diagnosed as an adult, think about the things that you wish you had known in the first year.
I encourage you to share those insights with your diabetes community, wherever it is.
If it’s on IG, tag us @thisistype1pod.
Mentioned in This Episode
- Just Diagnosed With Type 1 Diabetes
- Newly Diagnosed with Type 1 Diabetes: What to Know
- What You Need to Know If You’re Diagnosed with Type 1 Diabetes
- Juicebox Podcast
- Diabetes Connections with Stacey Simms Podcast
- Diabetics Doing Things Podcast
- Dawning Diabetes Podcast
- Episode 56: Working Corporate with Type 1 Diabetes
- Episode 44: The Honeymoon Period
- What I Wish People Knew About Type 3C Diabetes – Beyond Type 1
Community & Social
- Join us in the Half-Dead Pancreas Club, our private Discord community for people with T1D.
- Follow us on Instagram @thisistype1pod, @jj_crystalkat, & @type1ravenclaw
- Follow us on Facebook
Choose Where to Listen
Credits
Our music is by Joseph McDade. Check out his website here!
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Thanks for doing this episode. As newly diagnosed, some of my additional thoughts
1. for adults, first problem is getting the right diagnosis. PCPs will insist it is only type2 and mine even refused to order autoantibody tests.
2. Not all endocrinologists know diabetes- my pcp referred me right away – but the endo was the worst. Didn’t even mention cgms or any tech. Handed me a paper book when I showed him the food log I had created myself on my phone notes. Point is – look up their resume and publications. If there is a university near you with a health care facility, choose their providers- they are more into research and can help better with specialized issues like T1.
3. Verify if the provider is in your network
4. Find out whether your ins covers 30 day or 90 day scripts.
5. If you’re put on flex pens, the needles come separate and require a prescription
6. Most glucose meters don’t come with test strips – it’s all separate.
7. Sign up for Jdrf newly diagnosed kit. They send you great material for all of the above and volunteers in your area reach out. They’re a great resource for even the dumbest questions.
8. Sign up on forums and post questions shamelessly. Other T1s give much better support than most doctors.
These are AMAZING additions, thank you so much for sharing! I did not know about the JDRF newly diagnosed kit – that sounds like pure gold!